A second post within three days? And a title without alliteration? Whatever would possess me?
Well, here's the thing: all weekend I've been back and forth on my decision to share the URL for this blog on my Facebook profile, which I did this past Friday. The choice was made in light of much good-natured badgering by a certain sister, along with rational conversation with wise friends, the same friends who generously remind me to see the forest among the trees on an essentially daily basis.
I was so touched by the kind messages from classmates that followed my post, yet I still find myself awake, at almost 2am on a Sunday night, contemplating the choice. It's not that I don't see the benefit of encouraging visitors to the site. All along, the whole point of this project wasn't to share "my story." Rather, the purpose was always to raise awareness about the issue, which grows in magnitude every day, to generate conversation and incite progress, in some small way.
I suppose I think of myself as a somewhat private person. I never thought of my transplant as a big deal or as a big secret, but before recently, my medical history was never something I planned on sharing with anyone other than my good friends. This blog changed all that, to a certain extent. However self-centered it is, my fear is that friends, classmates, or anyone who happens upon this blog as a result of my public announcement of its existence will think I'm seeking attention or recognition. The long and short of it is that I do not wish to be lionized for living through circumstances I did not choose and for feeling compelled to do something about a matter that is pervasive in my life and in the lives of many, many others.
Phew. I feel much better now that I've said that.
In other news, you might be wondering what your donation could do right now for renal transplant research at Columbia-Presbyterian. I'm so glad you asked! According to Dr. Lloyd Ratner, director of renal transplantation at the medical center, the money you give will help fund studies investigating transplant from "incompatible" donors and the development of alternative sources of organs for transplant (not just renal), such as stem cells and xenografts. On the more immediate horizon, donations will also go into programs that aim to increase access to transplant by pairing patients with living, unrelated donors. If you're thinking about giving, no amount of money is too small.
I will leave you with these statistics, from the U.S. Department of Health and Human Services Organ Donor Initiative website (http://www.organdonor.gov/Default.asp):
-Every 11 minutes, someone is added to the waiting list for an organ.
-On average, 20 people a day die while awaiting an organ transplant.
-According to 2009 statistics, 75% heart transplant recipients, 73% liver recipients, 69% kidney recipients and 54% lung recipients were living 5 years after their transplants.
-One organ donor can save up to eight lives. Wow!
Sunday, February 27, 2011
Friday, February 25, 2011
A Pertinent Pause
This week, I was poised to write another lighthearted post about my training exploits. I had a gym anecdote to share (one involving the apparent performance of a fellow gym-goer, blasting show tunes from his iPod and making interesting use of the body balls in one exercise studio, to the delight of those who had gathered there for a class). I had a cryptic/inspiring yoga instructor quote to share. But alas, those things will have to wait.
Yesterday, it was widely reported by popular and medical news outlets that a panel of healthcare experts from the United Network for Organ Sharing made public a new proposal for ranking those in line for organ transplant. If adopted, the proposal will replace the current "first come, first served" policy for with one that makes kidneys preferentially available for younger patients who are expected to live longer.
My initial response to the proposal was positive; after all, it seems logical that those who are "graded" highly according to the new algorithm will get the most--in terms of longevity and productivity--out of the distressingly limited number of organs available. I still believe that to be true. However, the lifespan of a kidney need not be so simple as the one it is presumed to have by the new proposal.
Consider this: a 20 year-old dies tragically in a motorcycle accident. His family chooses to donate his organs. Two patients are medically qualified to receive the donor's kidneys. One is 52 years-old, diagnosed with stage I hypertension two years ago, the father of four children ranging in age from 13 to 24 and currently covered by private health insurance. The other is 25 years-old with seemingly no other co-morbid conditions, no children, and is unemployed with no insurance coverage. It seems obvious that the 25 year-old would live the longest if he receives the newly available organ. Or is it? It is my firm belief that before measures are adopted that will make it more difficult for the 52 year-old hypertensive father of four to receive a life-saving transplant, legislators should take a good, long look at the programs in place to ensure that the kidney gifted to the equally worthy, uninsured 25 year-old will live out its full potential.
It's still taboo to talk about decisions like this one. No one wants to make the judgment that denies someone new life. But sadly, these are the kinds of choices we're left with when demand so obviously overwhelms supply. Proposals like the one put forward by the panel sound logical and fair, until you're the one shunted from the top of the list to receive an organ. Disease doesn't strike in a systematic fashion. Not everything happens for a reason. It is my sincere hope that the same concentrated effort that went into writing the current proposal will be applied to coordinate new, inventive ways to expand the supply and long-term viability of organs.
Yesterday, it was widely reported by popular and medical news outlets that a panel of healthcare experts from the United Network for Organ Sharing made public a new proposal for ranking those in line for organ transplant. If adopted, the proposal will replace the current "first come, first served" policy for with one that makes kidneys preferentially available for younger patients who are expected to live longer.
My initial response to the proposal was positive; after all, it seems logical that those who are "graded" highly according to the new algorithm will get the most--in terms of longevity and productivity--out of the distressingly limited number of organs available. I still believe that to be true. However, the lifespan of a kidney need not be so simple as the one it is presumed to have by the new proposal.
Consider this: a 20 year-old dies tragically in a motorcycle accident. His family chooses to donate his organs. Two patients are medically qualified to receive the donor's kidneys. One is 52 years-old, diagnosed with stage I hypertension two years ago, the father of four children ranging in age from 13 to 24 and currently covered by private health insurance. The other is 25 years-old with seemingly no other co-morbid conditions, no children, and is unemployed with no insurance coverage. It seems obvious that the 25 year-old would live the longest if he receives the newly available organ. Or is it? It is my firm belief that before measures are adopted that will make it more difficult for the 52 year-old hypertensive father of four to receive a life-saving transplant, legislators should take a good, long look at the programs in place to ensure that the kidney gifted to the equally worthy, uninsured 25 year-old will live out its full potential.
It's still taboo to talk about decisions like this one. No one wants to make the judgment that denies someone new life. But sadly, these are the kinds of choices we're left with when demand so obviously overwhelms supply. Proposals like the one put forward by the panel sound logical and fair, until you're the one shunted from the top of the list to receive an organ. Disease doesn't strike in a systematic fashion. Not everything happens for a reason. It is my sincere hope that the same concentrated effort that went into writing the current proposal will be applied to coordinate new, inventive ways to expand the supply and long-term viability of organs.
Tuesday, February 15, 2011
Slow but Steady
Today was one of those days I was ready to break out the jazz hands and "dance face" to "Party in the USA" while bouncing along on the treadmill. Oh come on, don't pretend you haven't had those days. I don't know what it was--the fact that I was pressed for time, that I hadn't left my couch...err...apartment all morning or that I was simply motivated by the scintillating coverage of Red Sox spring training on the gym TVs, but I ran super fast--for me, anyway. I'm pretty certain edamame (I swear by the soy!) andIt felt great to jump into a running routine this week. On Tuesday, I ran a respectable 3.1 miles, albeit at a snail's pace. I decided to up the ante today, but my general strategy is to start with easy runs so that I don't set myself up to feel like I'm failing to meet the small goals I make for myself. For now, I'm building up distance, not speed, and I trying not to get distracted by my treadmill "neighbors," inevitably barreling along, roadrunner-style, at over 8 miles an hour. So far, depending on my mood and schedule, I've been alternating runs with some interval training. I'm confident I'll be able to sustain a faster clip once my endurance improves.
I promised you news. Thank goodness for subtitled television! So...a porpoise was recently rescued off the New England coastline. Crazy, right? That's all I know.
Have I mentioned how overwhelmed I've been by the enthusiasm that followed my first post? Frankly, it's humbling.
Saturday, February 12, 2011
So, I had this idea...
It came to me...at the gym, of all places. I was on the treadmill trying to ward off boredom when it dawned on me. Eureka! What better way to celebrate turning (gulp) 25 than to mark the 10 year anniversary of my kidney transplant? And how better to do that than by raising awareness and money for the thousands of others who haven't yet been as lucky?
With some trepidation, I hatched the plan to start this blog. The main purpose isn't to wax poetic on my views (although I'm sure there will be plenty of the usual self-indulgent commentary), but to get word out about my goal to run a 10k (or several, potentially) next fall in honor of the past ten years and to kick off the next decade during which my Dad's kidney will hopefully continue to be its rockstar self.
I intend to use this blog as a means of keeping myself accountable. Though for some of you, a 10k is a walk in the park, let's face it, med school has taken quite a significant toll on my exercise routine. There will be times--an upcoming chunk of time, in particular--when I will be noticeably absent. However, I hope to post every week or so with my progress and any recent, relevant news. Ultimately, I hope to raise money for organ transplant research and to subsidize the exhorbinant cost of immunosuppressive medications for people who can't cover it themselves.
My efforts will focus specifically on the work being done at New York Presbyterian-Columbia University Medical Center, where I underwent my transplant surgery on July 26, 2001, but there are plenty of centers in need of help. At any given time, about 800 people are waiting for kidneys at CUMC alone; one can only imagine the numbers if those in line for other transplantable organs were tallied. Within Region 9 of the United Network for Organ Sharing, which covers only the state of New York and Western Vermont, this past month more than 7,500 people were awaiting kidneys.
There are countless worthy organizations to which one can give. Regardless of your religious or moral beliefs, I hope you will join me in acknowledging these people and in celebrating the modern miracle of organ transplant. To be completely honest, it feels odd and uncomfortable to be sharing this information about myself in such a public forum and, most of all, to be soliciting my friends for donations. However, I believe it's worth this feeling of exposure even if only a single person is helped by this campaign.
So I guess you're wondering how you factor into all of this. Well, here's what you can do:
1. Nothing! I will never know and promise to love you anyway. Maybe.
2. Read and feel inspired to do something--anything.
3. Send me song suggestions or, better yet, make me a 10k playlist.
4. Cheer me on!
5. Pass on word to friends, family, co-workers, whoever.
6. Join me! Run yourself and get friends and family to sponsor you for this cause.
7. Support transplant research and add to the fund for people struggling with healthcare costs, now or in the future.
Send your donation, payable to Columbia University and designated for renal transplant (or any other organ of your liking) to:
New York Presbyterian Hospital
Attn: Elena Manuel
622 West 168th St., PH-14-407
New York, NY 10032
May this be the start of an interesting and exciting adventure!
All my love,
Sarah
With some trepidation, I hatched the plan to start this blog. The main purpose isn't to wax poetic on my views (although I'm sure there will be plenty of the usual self-indulgent commentary), but to get word out about my goal to run a 10k (or several, potentially) next fall in honor of the past ten years and to kick off the next decade during which my Dad's kidney will hopefully continue to be its rockstar self.
I intend to use this blog as a means of keeping myself accountable. Though for some of you, a 10k is a walk in the park, let's face it, med school has taken quite a significant toll on my exercise routine. There will be times--an upcoming chunk of time, in particular--when I will be noticeably absent. However, I hope to post every week or so with my progress and any recent, relevant news. Ultimately, I hope to raise money for organ transplant research and to subsidize the exhorbinant cost of immunosuppressive medications for people who can't cover it themselves.
My efforts will focus specifically on the work being done at New York Presbyterian-Columbia University Medical Center, where I underwent my transplant surgery on July 26, 2001, but there are plenty of centers in need of help. At any given time, about 800 people are waiting for kidneys at CUMC alone; one can only imagine the numbers if those in line for other transplantable organs were tallied. Within Region 9 of the United Network for Organ Sharing, which covers only the state of New York and Western Vermont, this past month more than 7,500 people were awaiting kidneys.
There are countless worthy organizations to which one can give. Regardless of your religious or moral beliefs, I hope you will join me in acknowledging these people and in celebrating the modern miracle of organ transplant. To be completely honest, it feels odd and uncomfortable to be sharing this information about myself in such a public forum and, most of all, to be soliciting my friends for donations. However, I believe it's worth this feeling of exposure even if only a single person is helped by this campaign.
So I guess you're wondering how you factor into all of this. Well, here's what you can do:
1. Nothing! I will never know and promise to love you anyway. Maybe.
2. Read and feel inspired to do something--anything.
3. Send me song suggestions or, better yet, make me a 10k playlist.
4. Cheer me on!
5. Pass on word to friends, family, co-workers, whoever.
6. Join me! Run yourself and get friends and family to sponsor you for this cause.
7. Support transplant research and add to the fund for people struggling with healthcare costs, now or in the future.
Send your donation, payable to Columbia University and designated for renal transplant (or any other organ of your liking) to:
New York Presbyterian Hospital
Attn: Elena Manuel
622 West 168th St., PH-14-407
New York, NY 10032
May this be the start of an interesting and exciting adventure!
All my love,
Sarah
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